Thursday, March 8, 2012
It looks like Jie Jie's spinal cord is NOT tethered!!! However, the neurologist is having a neurosurgeon review the MRI just to make certain.
The neurologist also ordered a brain MRI because, "It's routine when there are spinal anomalies." Please give me your opinions on your thoughts of "routine" tests when there aren't any symptoms. The neurologist even said she didn't find anything to warrant a brain MRI other than the fact that it's routine when there are spinal anomalies.
The MRI revealed some good things, too, that have me rather elated. There were parts of Jie Jie that I wasn't sure she had and these parts are there, in the right place and looking the right size. Like her kidneys! There are two and they seem to me to be the right shape and size.
Next week we have several more appointments, a follow-up with the GI specialist, a first meeting with the nephrologist, OT & PT.
How many of you have a love-hate relationship with the diagnostic tests like I do? I truly want to know all the things I need to about my daughter, but I absolutely dread that they'll find something terrible. Then there is what it puts Jie Jie through. So far, the most invasive thing we've done is a blood test, but there are some tests that are going to be very invasive. I shake inside when I think of these, and feel utterly sick, though I've seen many families and children go through it and come out just fine.
This has been a HARD week paper-work-wise. I've had four straight days of intense paperwork related to the adoption and house refinancing and re-adoption and getting copies of the MRI and report, etc... I finally got over a strange sore throat, ear ache and swollen gland thing, and Jie Jie got a streaming cold, which, luckily, lasted only 4 days, and today I ran her ragged trying to deliver, pick up and sign papers from one end of town to another. At the end of the day, she finally stopped in her tracks and started to cry and my newly mature 8 year-old was my tiny girl again needing to be held. It was such a sweet moment even though I felt bad that she was crying and it was all my fault.