Thursday, March 8, 2012

MRI Results

It looks like Jie Jie's spinal cord is NOT tethered!!! However, the neurologist is having a neurosurgeon review the MRI just to make certain.

The neurologist also ordered a brain MRI because, "It's routine when there are spinal anomalies." Please give me your opinions on your thoughts of "routine" tests when there aren't any symptoms. The neurologist even said she didn't find anything to warrant a brain MRI other than the fact that it's routine when there are spinal anomalies.

The MRI revealed some good things, too, that have me rather elated. There were parts of Jie Jie that I wasn't sure she had and these parts are there, in the right place and looking the right size. Like her kidneys! There are two and they seem to me to be the right shape and size.

Next week we have several more appointments, a follow-up with the GI specialist, a first meeting with the nephrologist, OT & PT.

How many of you have a love-hate relationship with the diagnostic tests like I do? I truly want to know all the things I need to about my daughter, but I absolutely dread that they'll find something terrible. Then there is what it puts Jie Jie through. So far, the most invasive thing we've done is a blood test, but there are some tests that are going to be very invasive. I shake inside when I think of these, and feel utterly sick, though I've seen many families and children go through it and come out just fine.

This has been a HARD week paper-work-wise. I've had four straight days of intense paperwork related to the adoption and house refinancing and re-adoption and getting copies of the MRI and report, etc... I finally got over a strange sore throat, ear ache and swollen gland thing, and Jie Jie got a streaming cold, which, luckily, lasted only 4 days, and today I ran her ragged trying to deliver, pick up and sign papers from one end of town to another. At the end of the day, she finally stopped in her tracks and started to cry and my newly mature 8 year-old was my tiny girl again needing to be held. It was such a sweet moment even though I felt bad that she was crying and it was all my fault.

1 comment:

Anonymous said...

I would get the test, even though it will take time, money and stress. I saw it first hand with a friend's dog. If there are congenital problems at one end of the spine (in the dog's case his tail), there are often problems at the other end. The dog was about two years old when he stepped off a curb and something happened in his neck. Surgery was tried, but the dog didn't make it. On necropsy, the problem was identified as a congenital defect.

Of course a child isn't like a dog. But you know there is a problem at one end of Jiejie's spine. This is a warning that there might be a problem at the other end. Better to check now than to have a tragedy happen.