Thursday, June 7, 2012
Physical therapy. PT. We are finally scheduled for Jie Jie's evaluation at the state/county PT office, a service she qualifies for based soley on special need, not income, next week. There was also a grand meeting at another service and I got a conference call with some good suggestions. The best being that they think Jie Jie qualifies for SSI. Hello, great news, orthotics would be covered, I think.
Meanwhile, we've been doing the things we were told to do by the PT lady at Kaiser, plus all the things I've done since getting her. It got to a point where I thought Jie Jie could at least do some of the exercises and stretches by herself, which I thought was great since it meant she could do them every single day. After a week and a half of this, I ran her through her paces and she didn't do well. She'd been using the wrong muscle groups to do the exercises. On top of this, since Kaiser won't pay for her smo's (foot/ankle orthotics), I decided to make my own version while my complaint is being worked on. I taped layers of cardboard to the bottom outer edge of Jie Jie's shoe to help her foot roll into a normal position and it's been working, judging by the amount of soreness in the right area of her foot.
This, on top of me doing the PT to her and vigorous stretching and massage has been such a big difference in just a week. I ask myself every day, if I can get these results with cardboard and common sense, how far would she have come by now if I'd had the professional stuff we really need?
It just kills me that they call what I have health insurance.
I heard from Kaiser recently and the new higher up case manager suggested I recind my three complaints and put them into one, which will start another 30 day investigation. I gave her my okay then got a call a few days later from her saying it's best to keep them separate after all. I guess it's not only puppies and kittens that chase their tails.
Kaiser PT also told me, back when we saw them, that PT should not hurt or cause crying. Yeah, right! When my little girl struggles to lift her heels and rise up on her toes and mama is saying over and over and over and over again, "No, keep your knees straight," then those little muscles shake and quake and struggle to obey, you can bet my little nugget is going to feel defeated and sore and cry. Then, after a normal day of play, combined with a walk, and the newly rigged shoes, and some PT and stretching, there's quite a lot of pain. If I'd followed the no pain, no cry advice, my little girl would still have 1/8" thick callouses all over the bottoms of her feet, that crack because the skin is too tight to move as the foot moves, and she'd be walking on the outside edges of both feet while stepping on the one toe that wants to grow under instead of straight.
The funnest part of PT I invented only yesterday. It's picking up marbles in a dish tub with one's toes. Those little things roll all over and those little feet start moving and grooving chasing them. Those little feet sort of remind me of sea turtle flippers! Best of all, with ten marbles to pick up, it's easy to see progress and feel that the task was completed successfully. Score one for mama for coming up with this one! It was so nice to hear laughter instead of tears.